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Beliefs, Attitudes, and Response to Genetic Testing in SarcomaPatients

University of Utah · with National Cancer Institute (NCI), University of New South Wales · NCT06875700

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Ages 18+ · All sexes
Healthy volunteers
Accepted
Study type
Observational
Target enrollment
300
US sites recruiting
1
Study start
July 9, 2024
Record last updated
June 13, 2025

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

Genomic research has shown that a portion of leiomyosarcomas can be attributed to an underlying cancer predisposition syndrome. However, the optimal approach for incorporating germline testing into the care of these patients. This study is assessing the beliefs about the heritability of leiomyosarcoma and other cancer risks, and attitudes towards germline testing among leiomyosarcoma patients.

Conditions: Leiomyosarcoma

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion LMS Proband

  • Actionable germline PV detected in the research context
  • Living
  • No prior germline testing for this PV
  • Able to speak and read English
  • Mentally competent
  • Age 18 or older

Relative of LMS Proband

  • 25-50% chance for having inherited the PV
  • No prior germline testing for this PV
  • Able to speak and read English
  • Mentally competent
  • Age 18 or older

Exclusion (both cohorts)

  • \<18 years
  • Unable to read or write

Recruiting US locations

  • Huntsman Cancer Institute at the University of Utah

    Salt Lake City, UT 84112

    Site contact: Wendy K Kohlmann, MS · 801-587-5556 · wendy.kohlmann@hci.utah.edu

Study contacts (from the official record)

  • Gregg Wood · 8016464215 · gregg.wood@hci.utah.edu
All healthy volunteers studies in Utah →