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Early PKD Observational Cohort Study

University of Kansas Medical Center · with National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) · NCT02936791

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Ages 4–35 · All sexes
Healthy volunteers
Accepted
Study type
Observational
Target enrollment
250
US sites recruiting
3
Study start
April 2016
Record last updated
April 27, 2026

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

This observational study will collect blood and urine and clinical information from individuals with early-stages of polycystic kidney disease (PKD), their unaffected siblings and normal volunteers to create a biobank, also called a biorepository. The long-term goal is to develop new knowledge on biological markers or biomarkers that indicate changes in the disease progression. An understanding of biomarkers for early renal cyst growth will benefit PKD patients as new therapies are being developed and tested.

Conditions: Polycystic Kidney Disease

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria

  • Inclusion for early stage autosomal dominant polycystic kidney disease (ADPKD):
  • Family history of PKD
  • All races and ethnic groups
  • Glomerular filtration rate (GFR) >80 ml/min per 1.73 m2
  • Inclusion for Healthy Volunteers:
  • Male or female with no family history of kidney disease
  • All races and ethnic groups
  • Normal GFR

Exclusion Criteria

  • Non-insulin or insulin-dependent diabetes mellitus
  • Systemic illness (i.e.systemic lupus erythematosus, vasculitis)
  • Unable to provide written informed consent
  • Unavailable for magnetic resonance imaging (MRI) and blood/urine collection

Recruiting US locations

  • University of Chicago

    Chicago, IL 60637

    Site contact: Arlene Chapman, MD · Achapman1@medicine.bsd.uchicago.edu

  • University of Kansas Medical Center

    Kansas City, KS 66160

    Site contact: Cathy Creed, RN · 913-588-0053 · ccreed@kumc.edu

  • Children's Mercy Hospital

    Kansas City, MO 64108

    Site contact: Megan Mains, BSN · 816-760-5918 · mmmains@cmh.edu

Study contacts (from the official record)

  • Cathy Creed, RN · 913-588-0053 · ccreed@kumc.edu
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Early PKD Observational Cohort Study (NCT02936791) | Bored Studies