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Foundation for Sarcoidosis Research Advanced Cures Registry (FSR-SARC Registry)

Foundation for Sarcoidosis Research · NCT06234384

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Ages 7+ · All sexes
Healthy volunteers
Accepted
Study type
Observational
Target enrollment
6833
US sites recruiting
1
Study start
July 2013
Record last updated
September 19, 2025

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

The goal of the study is to create a longitudinal record of patient reported outcomes for people living with sarcoidosis that maintains privacy. Patients report on the following: demographics, disease symptoms, diagnostic journey, provider experience, disease treatment, and burden of disease. Patients can also link their Electronic Health Records (EHR). The goal is to create a natural history of sarcoidosis, support research, and better understand the needs of the sarcoidosis community.

Being studied: Sarcoidosis diagnosis

Conditions: Sarcoidosis

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria

  • English speaking
  • Consent
  • Sarcoidosi diagnosis -

Exclusion Criteria

NONE

Recruiting US locations

  • Foundation For Sarcoidosis Research

    Chicago, IL 60654

    Site contact: Tricha Shivas, MBe · 312-241-0400 · tricha@stopsarcoidosis.org

Study contacts (from the official record)

  • Leslie Serhuck, MD MA Mbioethics · 312-341-0500 · info@stopsarcoidosis.org
  • Tricha Shivas, MBe · 312-341-0500 · tricha@stopsarcoidosis.org
All healthy volunteers studies in Illinois →
Foundation for Sarcoidosis Research Advanced Cures Registry… (NCT06234384) | Bored Studies