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Generating Advancements Through Longitudinal Analysis in X and Y Variations (GALAXY)

University of Colorado, Denver · with Children's Hospital Colorado · NCT06373861

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Ages 0 mo–100 · All sexes
Healthy volunteers
Accepted
Study type
Observational
Target enrollment
5000
US sites recruiting
1
Study start
April 28, 2022
Record last updated
April 18, 2024

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

GALAXY is a registry research study that plans to learn more about individuals with X\&Y variations (also called sex chromosome aneuploidies) through collecting information from medical records.This includes genetic tests, imaging, medications, and more for hundreds of patients seen at a number of clinics across the US. The purpose of the GALAXY Registry is to collect and store this information with the overall goal to improve health outcomes in individuals with X\&Y variations and the care they receive.

Being studied: no intervention

Conditions: Sex Chromosome Aneuploidy

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria

  • Genetically-confirmed diagnosis of a sex chromosome aneuploidy condition
  • Any age
  • Any gender
  • Informed consent for individuals >18 years of age, parent/guardian permission for individuals \<18 or proxy-consent from legally authorized representative if impaired decision making

Exclusion Criteria

a. Lack of documentation of genetic testing confirming SCA diagnosis

Recruiting US locations

  • Children's Hospital Colorado

    Aurora, CO 80045

    Site contact: Shanlee M Davis, MD, PhD · 720-777-6073 · shanlee.davis@childrenscolorado.org

Study contacts (from the official record)

  • Shanlee M Davis, MD, PhD · 720-777-6073 · shanlee.davis@childrenscolorado.org
All healthy volunteers studies in Colorado →
Generating Advancements Through Longitudinal Analysis in X and Y… (NCT06373861) | Bored Studies