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Gonadal Tissue Cryopreservation for Fertility Preservation in Children With a Disorder of Sex Development

Erin Rowell · with Ann & Robert H Lurie Children's Hospital of Chicago · NCT06692049

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Up to age 30 · All sexes
Healthy volunteers
Accepted
Study type
Observational
Target enrollment
250
US sites recruiting
1
Study start
April 4, 2018
Record last updated
September 3, 2026

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

The purpose of this study is to offer gonadal tissue freezing and storage to children who are diagnosed with a disorder of sex development (DSD), who are at increased risk of infertility and certain malignancies (cancer). This study involves the storage of gonadal tissue that is being removed for medical reasons (e.g. prevention of cancer development). It includes the processing and freezing of this gonadal tissue, hopefully for potential future use. The tissue will then be stored long-term until the child wishes to try to use the tissue.

Being studied: Gonadectomy

Conditions: DSD, 46,XY; DSD, Ovotesticular; DSD, Sex Chromosome; Disorders of Sex Development; Disorder of Sex Development, 46,XY; Disorder of Sex Development, 46,Xy, Cbx2-Related

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria

  • Individual \< 30 years of age
  • Children diagnosed with a disorder of sex development who have any risk for malignancy in their gonadal tissue or will have their gonads removed for another clinical indication

Exclusion Criteria

  • Pregnant children
  • Patients likely to retain inherent fertility and reproductive function
  • Children deemed high risk for perioperative complications
  • Patients 12-18 unable to provide assent (i.e. significant psychiatric problems/cognitive delay)
  • Patients 18 and older unable to provide consent (i.e. significant psychiatric problems/cognitive delay)

Recruiting US locations

  • Ann & Robert H. Lurie Children's Hospital of Chicago

    Chicago, IL 60611

    Site contact: Sara Reyes · 312-227-4145 · FertilityPreservation@luriechildrens.org

Study contacts (from the official record)

  • Sara Reyes · 3122274145 · FertilityPreservation@luriechildrens.org
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Gonadal Tissue Cryopreservation for Fertility Preservation in… (NCT06692049) | Bored Studies