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Identifying and Caring for Individuals With Inherited Cancer Syndrome

OHSU Knight Cancer Institute · with National Cancer Institute (NCI), Oregon Health and Science University · NCT04494945

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Ages 18+ · All sexes
Healthy volunteers
Accepted
Study type
Interventional · Not applicable
Target enrollment
27500
US sites recruiting
2
Study start
March 9, 2020
Record last updated
July 14, 2026

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

This trial examines approaches to identify and care for individuals with inherited cancer syndrome. The purpose of this study is to offer no cost genetic testing to the general public. Researchers hope to learn the value of providing broad, public-wide testing for high risk cancer types (like hereditary breast and ovarian cancer or Lynch syndromes) instead of only testing people whose families are known to be high risk.

Being studied: Biospecimen Collection; Genetic Counseling; Genetic Testing; Survey Administration

Conditions: BRCA1/2-Associated Hereditary Breast and Ovarian Cancer Syndrome; Breast Ductal Carcinoma In Situ; Hematopoietic and Lymphoid System Neoplasm; Hereditary Neoplastic Syndrome; Lynch Syndrome; Malignant Solid Neoplasm

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria

  • ALL COHORTS: 18 years of age or older
  • Retrospective COHORT A: Per HIPAA waiver, Retrospective Cohort A will not actively consent
  • Retrospective COHORT A: Patients may or may not be diagnosed with cancer
  • Retrospective COHORT A: Patients have received genetic counseling in the past 5 years
  • Retrospective COHORT A: Patients have genetic variants that include BRCA1, BRCA2 and/or Lynch syndrome
  • COHORT A: Per Health Insurance Portability and Accountability Act (HIPAA) waiver, Cohort A returns survey as consent
  • COHORT A: Patients may or may not be diagnosed with cancer
  • COHORT A: Patients have received genetic counseling in the past 1 - 2 years
  • COHORT A: Patients have genetic variants that include BRCA1, BRCA2 and/or Lynch syndrome
  • COHORT A: INCLUSIVE of no contact list to exclude from Cohort B
  • COHORT B: Creation of secure Healthy Oregon Project (HOP) app account
  • COHORT B: Consent to this project, either hard or electronic signature
  • COHORT B: Consent to the HOP repository, either hard or electronic signature
  • COHORT B: Choosing to submit a deoxyribonucleic acid (DNA) sample
  • COHORT B: Patients diagnosed with any National Cancer Institute (NCI)-reportable cancers, including ductal carcinoma in situ (DCIS) and/or in situ breast cancer
  • COHORT B: Must have had an encounter within past twelve months
  • COHORT B: Exclude Cohort A
  • COHORT C: Creation of secure Hop app account
  • COHORT C: Consent to this project, either hard or electronic signature
  • COHORT C: Consent to the HOP repository, either hard or electronic signature
  • COHORT C: Choosing to submit a DNA sample

Recruiting US locations

  • Providence Portland Medical Center

    Portland, OR 97213

    Site contact: Bill J. Wright, Ph.D. · Bill.Wright@providence.org

  • OHSU Knight Cancer Institute

    Portland, OR 97239

    Site contact: Jackilen Shannon, Ph.D. · 503-494-4993 · shannoja@ohsu.edu

All healthy volunteers studies in Oregon →
Identifying and Caring for Individuals With Inherited Cancer Syndrome (NCT04494945) | Bored Studies