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Multicenter HomeVENT: Home Values and Experiences Navigation Track

Johns Hopkins University · with Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) · NCT06102330

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Ages 18+ · All sexes
Healthy volunteers
Accepted
Study type
Interventional · Not applicable
Target enrollment
600
US sites recruiting
4
Study start
February 6, 2024
Record last updated
July 16, 2026

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

This is a multicenter study to test a decision-making support process for families and clinicians facing decisions about chronic home ventilation for a child. The investigators hypothesize that the intervention will increase family preparedness for decision-making and will improve clinician-family shared-decision making. Half of families will be assigned to "usual care" arm and half to the "intervention" arm. Intervention families will view the study website with study staff and will answer questions related to website content. All families will be interviewed and surveyed at 1, 6 and 12 months after enrollment. Each family will designate 1-2 physician involved in the decision about home ventilation; each physician will be interviewed and surveyed at 1 month.

Being studied: HomeVENT decision support tool

Conditions: Pediatric ALL; Respiratory Insufficiency; Communication

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria

  • English- or Spanish-speaking
  • Males and females; Age 18 and over.
  • Parent of a child facing a decision about home ventilation within 30 days. A "parent" will be defined as any self-identified primary caregiver (parents, grandparents, etc).

or Physician of a child whose parents are enrolled in the study; physician must be engaged in the home ventilation decision.

  • Provision of signed and dated informed consent form (parent) or completion of oral consent (physician)
  • Stated willingness to comply with all study procedures and availability for the duration of the study
  • Access to necessary resources if choose to participate via internet or telephone

Exclusion Criteria

  • Excluding children as they cannot be legal decision-makers
  • Non-English or Non-Spanish speaking parents, as the intervention website/ videos are only available in those two languages.

Recruiting US locations

  • Johns Hopkins All Childrens Hospital

    Tampa, FL 33701

    Site contact: Nicholas Jabre, MD · 717-215-6522 · njabre1@jhmi.edu

  • Children's Hospital New Orleans

    New Orleans, LA 70118

    Site contact: Carrie Henderson, MD · 504-899-9511 · chend7@lsuhsc.edu

  • Johns Hopkins University School of Medicine

    Baltimore, MD 21287

    Site contact: Renee D Boss, MD · 410-614-6444 · rboss1@jhu.edu

  • Seattle Childrens Hospital

    Seattle, WA 98145

    Site contact: Holly Vo, MD · 206-884-8355 · Holly.vo@seattlechildrens.org

Study contacts (from the official record)

  • Renee D Boss, MD · 4106146444 · rboss1@jhu.edu
  • Fiona Jardine, RN · 410-955-5232 · fjardin1@jhu.edu
All healthy volunteers studies in Florida →
Multicenter HomeVENT: Home Values and Experiences Navigation Track (NCT06102330) | Bored Studies