Patient Decision Aid in Supporting Decision-Making About When to Start or Stop New Drugs, Join Clinical Trials, or Continue Active Surveillance in Patients With Medullary Thyroid Cancer and Their Caregivers
M.D. Anderson Cancer Center · with National Cancer Institute (NCI) · NCT03892993
Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.
Key facts
- Compensation
- Not posted. Ask the study team before screening.
- Who can join
- Ages 18+ · All sexes
- Healthy volunteers
- Accepted
- Study type
- Interventional · Not applicable
- Target enrollment
- 120
- US sites recruiting
- 1
- Study start
- April 9, 2019
- Record last updated
- July 16, 2026
Status re-checked against ClinicalTrials.gov within the last 12 hours.
What the study is about
This trial develops and studies how well a patient decision aid works in supporting decision-making about when to start or stop new drugs, join clinical trials, or continue active cancer monitoring for patients with medullary thyroid cancer and their caregivers. Developing a patient decision aid may help patients with medullary thyroid cancer make well-informed decisions about their cancer care and be able to discuss their preferences with their doctors.
Being studied: Decision Aid; Questionnaire Administration
Conditions: Thyroid Gland Medullary Carcinoma
Eligibility criteria
Copied from the official record. The study team makes the final decision at screening.
Show full criteria
Inclusion Criteria
- Aged 18 years old or older
- Have or will face(d) this decision, including: Patient/survivor - who has medullary thyroid carcinoma, as determined by a clinician or documented in the Genetics of Endocrine Neoplasia Registry or sporadic (medullary thyroid carcinoma) MTC database; Caregiver/family member - of patient/survivor who has medullary thyroid carcinoma, as nominated by the patient/survivor; and Provider - who treats patients/survivors who have medullary thyroid carcinoma, as described above
- Able to speak, read, and write English
- Pregnant patients are included
Exclusion Criteria
--Individuals with cognitive or psychological impairment (e.g., depression, anxiety, severe mental illness; as documented in the registry)
Recruiting US locations
M D Anderson Cancer Center
Houston, TX 77030
Site contact: Elizabeth G. Grubbs · 713-792-6940 · eggrubbs@mdanderson.org
Study contacts (from the official record)
- Elizabeth G Grubbs, MD · (713) 792-0665 · eggrubbs@mdanderson.org
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