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PROSPECT Registry for Individuals at Risk for Genetic Prion Disease

Brian Appleby · with Case Western Reserve University, CJD Foundation · NCT07732608

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Ages 18+ · All sexes
Healthy volunteers
Accepted
Study type
Observational
Target enrollment
2000
US sites recruiting
1
Study start
August 25, 2026
Record last updated
September 16, 2026

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

PROSPECT is a prospective observational registry and longitudinal natural history study of adults at risk for genetic prion disease.

Conditions: Prion Diseases

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria

  • Age ≥18 years
  • At risk for genetic prion disease based on family history
  • Willing to comply with all study procedures including genetic testing and longitudinal follow-up
  • Resident in the United States
  • Sufficiently proficient in English to participate in all study procedures

Exclusion Criteria

  • Lacking capacity to independently consent at time of initial enrollment
  • Symptomatic of prion disease at time of initial enrollment
  • Inability to provide a backup contact

Recruiting US locations

  • University Hospitals Cleveland Medical Center

    Cleveland, OH 44106

    Site contact: Margaret Verba, MA · 216-368-2062 · mmv57@case.edu

Study contacts (from the official record)

  • Margaret Verba, MA · 216-368-2062 · margaret.verba@uhhospitals.org
  • Katie Glisic, MA · 216-368-0587 · kae13@case.edu
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PROSPECT Registry for Individuals at Risk for Genetic Prion Disease (NCT07732608) | Bored Studies