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STELLA-FTD: Examination of a Behavior Change Intervention for FTD Family Care Partners

Oregon Health and Science University · with National Institute on Aging (NIA) · NCT06613204

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Ages 18–100 · All sexes
Healthy volunteers
Accepted
Study type
Interventional · Not applicable
Target enrollment
640
US sites recruiting
1
Study start
June 23, 2025
Record last updated
October 27, 2025

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

The purpose of this nationwide study is to test STELLA-FTD (Support via Telehealth: Living and Learning with Advancing Alzheimer's Disease)-FTD, an intervention to specifically address the needs of family Care Partners of persons with frontotemporal degeneration (FTD). STELLA-FTD is a multicomponent videoconference-based intervention designed to facilitate effective use of community and peer resources to foster effective management of behavioral and psychological symptoms of dementia. The study is recruiting families from across the United States.

Being studied: STELLA-FTD Control; STELLA-FTD Test

Conditions: Frontotemporal Dementia; Caregiver Burden; Primary Progressive Aphasia (PPA); Corticobasal Syndrome

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria: Family Care Partner

  • Adult caring for family member with FTD.
  • Provides 4 or more hours of care/week. Does not have to reside with.
  • Identifies at least 2 moderately upsetting behaviors in the person with FTD.
  • Speaks and understands English to be able to participate in intervention.
  • Owns a telephone (smartphone, cell phone or landline).
  • Has email and mailing address to receive computer, study materials and surveys.
  • Provides informed consent to participate in the research.
  • Lives in the US

Inclusion Criteria: Person with FTD

  • Diagnosis of FTD
  • Family member of a Care Partner (this can be a relative, spouse, or close kin that is considered family).
  • Lives in US

Exclusion Criteria: Person with FTD

  • No Frontotemporal Degeneration diagnosis.
  • Unable to leave Care Partner during STELLA-FTD sessions.
  • Enrolled in hospice.

Exclusion Criteria: Family Care Partner

  • Unable to find activity for Care Recipient during STELLA-FTD sessions to allow Care Partner to work privately with Guide and other Care Partners.
  • Hearing and/or vision problems severe enough to prevent participation.
  • Refuses to be video-recorded during STELLA-FTD sessions.
  • Unwilling or unable to adequately follow study instructions and participate in study procedures.

Recruiting US locations

  • Oregon Health & Science University

    Portland, OR 97239

    Site contact: Hailey Chatterton, MS · 503-568-9725 · chatterton@ohsu.edu

Study contacts (from the official record)

  • Hailey Chatterton, MS · 503-568-9725 · chatterton@ohsu.edu
  • Allison Lindauer, PhD, APRN · 503-494-6976 · lindauer@ohsu.edu
All neurology studies in Oregon →
STELLA-FTD: Examination of a Behavior Change Intervention for FTD… (NCT06613204) | Bored Studies