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The Alpha-1 Foundation's and University of Florida's Alpha-1 Coded Testing (ACT) Study

University of Florida · NCT00500123

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Any age listed · All sexes
Healthy volunteers
Accepted
Study type
Observational
Target enrollment
50000
US sites recruiting
1
Study start
January 2001
Record last updated
November 24, 2025

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

The Alpha-1 Coded Testing (ACT) Study was established to study genetic testing and outcomes of individuals at risk for alpha-1 antitrypsin deficiency.

Being studied: Alpha-1 Antitrypsin Genotype

Conditions: Alpha-1 Antitrypsin Deficiency

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria

  • Individuals of any age at risk for alpha-1 antitrypsin deficiency on the basis of symptoms or family genetic risk.

Exclusion Criteria

  • Any person who has already had genotype and AAT level testing completed and has a qualified result.

Recruiting US locations

  • University of Florida

    Gainesville, FL 32610

    Site contact: Michelle Owens, RN, BSN · 352-273-6339 · Sandra.Owens@medicine.ufl.edu

Study contacts (from the official record)

  • Michelle Owens, RN, BSN · 352-273-6339 · Sandra.Owens@medicine.ufl.edu
  • Allison Faunce, B.A. · 352-273-8666 · Allison.Faunce@medicine.ufl.edu
All healthy volunteers studies in Florida →
The Alpha-1 Foundation's and University of Florida's Alpha-1 Coded… (NCT00500123) | Bored Studies