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Unhide® Project: A Digital Health Platform to Collect Lifestyle Data for Brain Inflammation Research

Brain Inflammation Collaborative · with Solve ME/CFS Initiative, Care Evolution · NCT04806620

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Ages 2+ · All sexes
Healthy volunteers
Accepted
Study type
Observational
Target enrollment
10000
US sites recruiting
1
Study start
July 5, 2023
Record last updated
January 22, 2026

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

The unhide® Project is a non-interventional, longitudinal research study designed to establish a secure data repository of demographic, health, and lifestyle information from individuals with brain inflammation and related neuroinflammatory conditions. Participants in the United States aged 2 years and older will provide self-reported health data, biometrics, and symptom diaries through the MyDataHelps™ app (branded as unhide® for this study). The goal is to create comprehensive longitudinal profiles to facilitate research into disease subtypes, causes, diagnostics, and potential treatments, as well as to identify potential participants for future optional studies. "Healthy" individuals without brain inflammation are also eligible to participate.

The digital health research platform used in this study was originally developed and designed by Solve M.E and was called SolveTogether. The Brain Inflammation Collaborative (BIC) expanded upon Solve M.E.'s work to include related diagnoses, pediatric participants, enhance symptom tracking, and more. BIC and Solve M.E. combined Solve Together and unhide®, to create The unhide® Solve Together Unified Platform in 2025.

Conditions: Post-Acute COVID-19 Syndrome; ME/CFS; Rheumatic Arthritis; Juvenile Rheumatoid Arthritis (JRA); Psoriatic Arthritis (PsA); Ankylosing Spondylitis (AS); Autoimmune Encephalitis; Celiac Disease; Celiac Disease in Children; Chronic Lyme Disease; Post-treatment Lyme Disease Syndrome; Crohn's Disease; Dysautonomia; Anorexia Nervosa; Bulimia Nervosa; ARFID; Avoidant / Restrictive Food Intake Disorder; Ehlers Danlos Syndrome; Endometriosis; Fibromyalgia (FM); Long COVID; Lupus; Migraines; Mast Cell Activation Syndrome; Multiple Sclerosis; Myalgic Encephalomyelitis (ME); Myasthenia Gravis, Generalized; Myasthenia Gravis in Children; Narcolepsy; Obsessive Compulsive Disorder (OCD); PANDAS; Pediatric Acute-onset Neuropsychiatric Syndrome (PANS); POTS - Postural Orthostatic Tachycardia Syndrome; General Anxiety Disorder, Social Anxiety Disorder; PTSD - Post Traumatic Stress Disorder; Psoriasis; Traumatic Brain Injury; Tourette's Syndrome; Inflammatory Bowel Disease (IBD); Autoimmune Diseases; Neurological Diseases or Conditions; Psychiatric Disorder; Sjogren's Syndrome; Ulcerative Colitis and Crohn's Disease

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Participants may be either self-diagnosed, or diagnosed by a physician with the following conditions:

  • Infection-associated chronic conditions such as Long COVID, chronic Lyme, myalgic encephalomyelitis (ME/CFS), and post-acute neuropsychiatric syndrome (PANS/PANDAS).
  • Neuroimmune, developmental, autonomic, and neurological conditions like migraines, dysautonomia, POTS, multiple sclerosis, and autism spectrum disorder.
  • Autoimmune diseases such as Lupus, Sjogren's Disease, rheumatoid arthritis, myasthenia gravis, ankylosing spondylitis, and related autoimmune conditions.

Inflammatory gastrointestinal conditions such as Crohn's Disease, Celiac Disease, and ulcerative colitis.

  • Behavioral and mood disorders such as anxiety, depression, bipolar disorder, PTSD, eating disorders, OCD, and other related conditions.
  • "Healthy" people (without brain inflammation), including unaffected individuals, unaffected individuals in the same household, and unaffected individuals who are married to relatives and family members.
  • Have consistent internet access and a cell phone, tablet, or PC since this is an online or app-based platform that requires entering data and completing surveys.
  • Currently live in the United States
  • Be able to participate in English (stay tuned for updates about the Spanish language version)
  • Be willing to share symptom and health data through the platform

Recruiting US locations

  • Brain Inflammation Collaborative

    Delafield, WI 53018

    Site contact: Christy Jagdfeld, CPA · 833-286-4433 · help@braininflammationcollaborative.org

Study contacts (from the official record)

  • Megan L Fitzgerald, PhD · 1-833-286-4433 · help@braininflammationcollaborative.org
  • Christina Moon · 1-833-286-4433 · help@braininflammationcollaborative.org
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Unhide® Project: A Digital Health Platform to Collect Lifestyle… (NCT04806620) | Bored Studies