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Validation and Scaling of Screening Program for Undiagnosed Myasthenia Gravis-Social Media Campaign Paired With a Self-moderated Assessment

ZS Associates · with UCB Pharma, University of California, San Francisco · NCT06866483

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Ages 18+ · All sexes
Healthy volunteers
Accepted
Study type
Observational
Target enrollment
1000
US sites recruiting
1
Study start
February 26, 2025
Record last updated
March 10, 2025

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

This study expands and validates the pilot study NCT06381284. It is a fully remote, site-less, prospective, observational study enrolling adults in the United States (excluding U.S. territories) with undiagnosed neuromuscular symptoms. The primary objective is to determine the validity of a self-assessment tool in encouraging undiagnosed participants, recruited through a social media campaign, to seek medical evaluation for suspected myasthenia gravis (MG).

Being studied: Social media recruitment; Self-Assessment; Follow-up

Conditions: Myasthenia Gravis; Neuromuscular Disease; Neuromuscular Manifestations

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria

  • Reside within the 50 states of the United States at the time of enrollment
  • Age 19 or older if reside in Nebraska or Alabama, Age 21 or older if reside in Mississippi, Age 18 years or older if reside in any other state
  • Active email account
  • Fluency in English (spoken / written), as demonstrated by the ability to read and sign the Informed Consent Form

Exclusion Criteria

  • Live in an overseas territory of the United States
  • Inability or unwillingness to provide written informed consent
  • Diagnosed myasthenia gravis, including sero-negative MG*
  • Diagnosed multiple sclerosis
  • Have speech impairment, eye/arm/leg weakness due to diagnosed brain cancer, or stroke

Recruiting US locations

  • ZS Associates

    Evanston, IL 60201

    Site contact: Ananda V Pandurangadu, MD · 847-448-1001 · support@unearthrootcause.com

Study contacts (from the official record)

  • Ananda Vishnu Pandurangadu, MD · 1-847-448-1001 · support@unearthrootcause.com
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Validation and Scaling of Screening Program for Undiagnosed… (NCT06866483) | Bored Studies