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Access to Genetic Testing in Underserved Patients With Cancer

University of Southern California · with National Cancer Institute (NCI), Northeastern University · NCT06422455

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Ages 18+ · All sexes
Healthy volunteers
Accepted
Study type
Interventional · Not applicable
Target enrollment
800
US sites recruiting
2
Study start
October 24, 2023
Record last updated
March 18, 2026

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

This study compares the experiences of people who receive information about genetic testing from a computer-generated character to patients who receive information from a human genetics healthcare provider. Patients with cancer are increasingly recommended for genetic testing as standard of care. Multiple factors contribute to low usage of genetic testing but for many patients the lack of access to genetic counseling and testing is an important and flexible factor. Lack of access is especially relevant to racial/ethnic minority patients and those living in non-metropolitan rural settings who are frequently cared for at safety-net hospitals with limited genetics services. Alternative delivery models are necessary to improve rates of access to genetic testing in patients with cancer. Health information technology is under used by genetics providers. A patient-facing relational agent (PERLA) will provide pre-test genetics education in both English and Spanish across two clinical settings to facilitate more timely access to genetic testing. Using the PERLA intervention may help researchers learn different ways to provide education about genetic testing to patients with cancer compared to usual care.

Being studied: Best Practice; Educational Intervention; Electronic Health Record Review; Genetic Counseling; Interview; Survey Administration

Conditions: Breast Carcinoma; Male Breast Carcinoma; Malignant Solid Neoplasm; Metastatic Prostate Carcinoma; Ovarian Carcinoma; Pancreatic Exocrine Neoplasm; Stage IVB Prostate Cancer American Joint Committee on Cancer v8; Triple-Negative Breast Carcinoma

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria

  • Age > 18 years old
  • Diagnosed with least one of the following:
  • Epithelial ovarian cancer
  • Exocrine pancreatic cancer
  • Metastatic or high or very high-risk prostate cancer
  • Breast cancer at or before age 50
  • Bilateral breast cancer
  • Triple negative breast cancer
  • Male breast cancer OR
  • Healthcare provider who treats patients with any of the above types of cancer
  • Able to read and write in English or Spanish
  • Able to provide informed consent

Exclusion Criteria

  • Patients who cannot provide informed consent
  • Patients who cannot see, read, or write
  • Patients who have the cancer and clinical characteristics defined in the inclusion criteria, but who do not speak English or Spanish
  • Patients with none of the listed cancer diagnoses and clinical characteristics
  • Healthcare provider who do not treats cancer patients

Recruiting US locations

  • USC / Norris Comprehensive Cancer Center

    Los Angeles, CA 90033

    Site contact: Charite Ricker · 323-409-7710 · ricker@usc.edu

  • University of Rochester

    Rochester, NY 14642

    Site contact: Meghan L. Underhill · meghan_blazey@urmc.rochester.edu

Study contacts (from the official record)

  • Charite Ricker, MS · 323-409-7710 · ricker@usc.edu
All healthy volunteers studies in California →
Access to Genetic Testing in Underserved Patients With Cancer (NCT06422455) | Bored Studies