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ALS Research Collaborative

ALS Therapy Development Institute · NCT06885918

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Ages 18+ · All sexes
Healthy volunteers
Accepted
Study type
Observational
Target enrollment
2000
US sites recruiting
1
Study start
September 12, 2014
Record last updated
March 20, 2025

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

The goal of this natural history study is to learn more about the biological and clinical aspects of amyotrophic lateral sclerosis (ALS). This study's findings will help with drug discovery, biomarker discovery, and outcome measure validation. Adults living with ALS, other motor neuron diseases (MND), a known mutation related to ALS and healthy volunteers contribute prospective and retrospective data to this study remotely. The study is sponsored and conducted by the ALS Therapy Development Institute.

Conditions: Amyotrophic Lateral Sclerosis; ALS (Amyotrophic Lateral Sclerosis); ALS With Frontotemporal Dementia (ALS/FTD); Motor Neuron Disease; Motor Neuron Disease, Amyotrophic Lateral Sclerosis

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria

  • 18 years of age or older
  • Can communicate in written English
  • Has a diagnosis of ALS/MND or is a known carrier of an ALS associated mutation

Exclusion Criteria

  • Significant cognitive impairment that would prevent individual completion and understanding of the informed consent process.

Recruiting US locations

  • ALS Therapy Development Institute

    Watertown, MA 02472

    Site contact: Alan S Premasiri, M.S. · 6174417200 · apremasiri@als.net

Study contacts (from the official record)

  • Alan S Premasiri, M.S. · 617-441-7200 · apremasiri@als.net
  • Beth Levine · 617-441-7200 · blevine@als.net
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ALS Research Collaborative (NCT06885918) | Bored Studies