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Dementia Caregivers' Link to Assistance and Resources

Visiting Nurse Service of New York · with National Institute on Aging (NIA) · NCT06860035

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Any age listed · All sexes
Healthy volunteers
Accepted
Study type
Interventional · Not applicable
Target enrollment
200
US sites recruiting
1
Study start
May 5, 2025
Record last updated
March 13, 2026

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

The goal of this clinical trial is to learn if the Dementia Caregivers' Link to Assistance and Resources (DECLARE) program can improve support of, and engagement with, caregivers of home health patients with dementia. DECLARE includes a caregiver self-assessment that is reported in the home health patient record, and increased access to social work for cases including dementia caregivers. The main questions we aim to answer are:

  • Will most caregivers who are offered the chance to complete an assessment choose to do so?
  • Will clinicians report that the assessment information was useful?
  • Will the rate of social work access increase for cases with patients with dementia who have involved family caregivers?

Researchers will compare DECLARE to usual care to see if taking part in the program increases caregiver self-efficacy and access to social work.

Participants will

  • Answer a short series of assessment questions and questions about their caregiving experiences at the beginning of the home health episode.
  • Receive a social work visit from a Licensed Social Worker trained in dementia care.
  • Answer a series of follow-up questions about their caregiving experiences at the end of the home health episode.

Being studied: Dementia Caregivers' Link to Assistance and Resources (DECLARE)

Conditions: Alzheimer Disease or Associated Disorder; Dementia

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria

  • Individual must be listed as the caregiver of record for a patient receiving home health care from the partner home health agency and have a phone number on file; the patient must meet the inclusion criteria listed below.
  • Home health patient (care recipient) must have a documented dementia diagnosis on the home health assessment, be 65 years or older, and have Traditional Medicare or Medicare Advantage as their primary payer for the home health episode.

Exclusion Criteria

  • Caregivers are excluded if they are unable to communicate in English.

Recruiting US locations

  • VNS Health Home Care

    New York, NY 10017

    Site contact: Julia G Burgdorf, PhD · (585) 406-7926 · julia.burgdorf@vnshealth.org

Study contacts (from the official record)

  • Julia Burgdorf, PhD · (585) 406-7926 · julia.burgdorf@vnshealth.org
  • Margaret McDonald, MSW · (646) 771-5336 · margaret.mcdonald@vnshealth.org
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Dementia Caregivers' Link to Assistance and Resources (NCT06860035) | Bored Studies