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Huntington's Disease Biobank: Advancing Remote Monitoring and Deep Phenotyping

Stanford University · with Schwab Charitable Fund · NCT06941662

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Any age listed · All sexes
Healthy volunteers
Accepted
Study type
Observational
Target enrollment
200
US sites recruiting
1
Study start
June 1, 2024
Record last updated
April 24, 2025

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

This observational study aims to identify novel biomarkers of disease onset and progression in Huntington's disease by integrating remote monitoring with fluid biomarkers. Using video-based computer vision and mobile app-based cognitive assessments combined with machine learning algorithms, we aim to develop markers that can be used by Huntington's disease patients at home.

Using machine learning to analyze videos of movement will capture the movements with an accuracy that will be as good as seeing an expert neurologist. These individualized markers can be followed over time to evaluate symptoms onset and change. The study will track disease progression and correlate these digital markers with changes in plasma and cerebrospinal fluid. The ultimate goal is to advance biomarker discovery and therapeutic development for Huntington's disease.

The study includes one in-person visit per year. A remote visit via Zoom or Facetime (15 min) every three months to record videos of movement. We can also share cutting-edge wristbands and a mobile phone app.

Being studied: computer vision, remote monitoring, blood, urine, wrist bands, mobile-app

Conditions: Huntington Disease

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria

  • Individuals with a positive test for the HD expansion mutation.

Exclusion Criteria

  • Individuals with movement disorders with a negative test for the HD expansion mutation.

Recruiting US locations

  • Stanford University

    Palo Alto, CA 94304

    Site contact: Minhtrang Chu, Study Coordinator · 650-250-3160 · mtchu@stanford.edu

Study contacts (from the official record)

  • Minhtrang Chu, Study Coordinator · 650-250-3160 · mtchu@stanford.edu
  • Olivia Lu, Study Coordinator · 650-374-9286 · olivialu@stanford.edu
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Huntington's Disease Biobank: Advancing Remote Monitoring and Deep… (NCT06941662) | Bored Studies