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Revealing Information Genuinely & Honestly Across Time - Communication Preferences Visit

St. Jude Children's Research Hospital · with National Cancer Institute (NCI) · NCT06993688

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Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Ages 12+ · All sexes
Healthy volunteers
Accepted
Study type
Interventional · Not applicable
Target enrollment
85
US sites recruiting
1
Study start
June 16, 2025
Record last updated
August 17, 2026

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

The purpose of this research study is to obtain insights and feedback from patients and parents about a new approach to support conversations about how cancer may affect one's future life and quality of life (i.e., prognostic communication). This study involves creating a personalized approach to discussing prognosis.

Primary Objectives

  • To evaluate the feasibility of implementing the RIGHTimeCPV intervention among pediatric oncology patients, caregivers, and clinicians (referred to herein as "shareholders").
  • To assess the acceptability of the intervention across the shareholder groups.

Secondary Objectives

  • To explore the potential impact of the RIGHTimeCPV intervention on communication quality, concordance in prognostic understanding, and therapeutic alliance between patients/families and multidisciplinary clinicians.
  • To explore whether the practice of eliciting, sharing, and honoring individualized communication preferences is sustained by clinicians after participation in the RIGHTimeCPV intervention.

Being studied: Prognostic Communication-Patient/parent; Prognostic Communication-CPC; Prognostic Communication-Oncologist

Conditions: Cancer; Communication

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria: Patients

  • Aged 12-25 years diagnosed with poor prognosis cancer (high risk or otherwise difficult to treat cancers), as defined by a pediatric oncologist estimating odds of overall survival as 50% or less
  • Anticipated by a pediatric oncologist to have one or more disease re-evaluation timepoints over the next six months
  • Not anticipated by a pediatric oncologist to approach end of life in the next three months

Inclusion Criteria: Parents/Caregivers

  • Aged 18 years or older and/or legally emancipated
  • Parent or other self-identified caregiver of a patient of any age with poor prognosis cancer (as defined above)

Inclusion Criteria: Oncologists

  • Pediatric oncologists who treat eligible patients/caregivers at the study site, St. Jude Children's Research Hospital (SJCRH) or its included affiliates:
  • Peoria, IL: The Jim and Trudy Maloof St. Jude Midwest Affiliate Clinic
  • Charlotte, NC: Novant Health Hemby Children's Hospital
  • Shreveport, LA: Ochsner LSU Health-Feist-Weiller Cancer Center

Inclusion Criteria: Communication Preferences Companions (CPCs)

  • Multidisciplinary clinicians from a participant's psychosocial or nursing care team, identified by that participant to serve as their 'communication preferences companion' (CPC) during the pilot
  • Provides clinical care to pediatric cancer patients under the auspices of psychology, social work, spiritual care, child life, cultural navigation, quality of life/palliative care, or nursing

Exclusion Criteria

  • Does not meet the stated inclusion criteria

Recruiting US locations

  • St. Jude Children's Research Hospital

    Memphis, TN 38105

    Site contact: Erica C. Kaye · 866-278-5833 · referralinfo@stjude.org

Study contacts (from the official record)

  • Erica C. Kaye, MD, MPH · 866-278-5833 · referralinfo@stjude.org
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Revealing Information Genuinely & Honestly Across Time -… (NCT06993688) | Bored Studies