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SMYLS Multi-site Trial

Medical University of South Carolina · with National Institute of Nursing Research (NINR) · NCT06035939

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Ages 14–21 · All sexes
Healthy volunteers
Accepted
Study type
Interventional · Not applicable
Target enrollment
272
US sites recruiting
1
Study start
April 4, 2024
Record last updated
December 8, 2025

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

The purpose of this study is to find out whether a web-based intervention using a mobile app is helpful for teens and young adults with sickle cell disease (SCD) in learning how to care for and manage their symptoms.

Being studied: Voice Crisis Alert V2; Electronic educational materials

Conditions: Sickle Cell Disease

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria

  • documentation in the electronic health record of any type of SCD
  • owns mobile device compatible with the intervention
  • access to the internet

Exclusion Criteria

  • Plans to relocate outside of study site area in the next 12 months
  • Plans to transition to adult care in 12 months or less
  • Parent/caregiver or provider report of neurocognitive impairment that precludes ability to use intervention and participate in study
  • non-English speaking

Recruiting US locations

  • Medical University of South Carolina

    Charleston, SC 29425

    Site contact: Shannon Phillips, PhD, RN · 843-792-9379 · phillipss@musc.edu

Study contacts (from the official record)

  • Shannon Phillips, PhD, RN · 843-792-9379 · phillipss@musc.edu
  • Margie Prentice, MBA · 843-792-4771 · prenticm@musc.edu
All healthy volunteers studies in South Carolina →
SMYLS Multi-site Trial (NCT06035939) | Bored Studies