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Studying Health Outcomes After Treatment in Patients With Retinoblastoma

Vanderbilt-Ingram Cancer Center · with National Cancer Institute (NCI) · NCT03932786

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Any age listed · All sexes
Healthy volunteers
Accepted
Study type
Observational
Target enrollment
900
US sites recruiting
10
Study start
January 24, 2019
Record last updated
September 19, 2025

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

This trial studies health outcomes after treatment in patients with retinoblastoma. Gathering health information over time from patients and family members through vision assessments, samples of tissue and saliva, and questionnaires may help doctors learn more about what causes retinoblastoma, identify long-term health outcomes for patients with retinoblastoma, and find out which therapies may be the best for treating retinoblastoma

Being studied: Biospecimen collection; Vision assessment; Questionnaire administration; Quality of life assessment; Laboratory Biomarker Analysis

Conditions: Retinoblastoma; Cancer Survivor; Biological Sibling; Intraocular Retinoblastoma; Unilateral Retinoblastoma

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria
  • Unilateral or bilateral intraocular retinoblastoma
  • Diagnosis between the ages of 0 - 17.99 years
  • Diagnosis on or after January 1, 2008
  • No exclusions based on primary or secondary treatment modalities
  • Retrospective group patients must be ≥ 6 months post end of treatment at study entry
  • For those already at this timepoint, they are now eligible
  • For those in treatment, or otherwise not yet at this timepoint, they are eligible once at they are ≥ 6 months post end of treatment
  • Prospective group patients must not have begun treatment
  • Patients with diminished capacity will not be enrolled.
  • Language: Patients must be able to communicate in English, French, or Spanish
  • Sibling Cohort: One sibling, not affected by retinoblastoma will be enrolled, preference for the sibling closest in age to the RB patient.
  • Regulatory Requirements: All patients and/or their parents or legal guardians must sign a written informed consent. All institutional, FDA, and NCI requirements for human studies must be met.

Recruiting US locations

  • Lurie Children's Hospital

    Chicago, IL 60611

    Site contact: Monica Newmark · mnewmark@luriechildrens.org

  • University of Illinois, Chicago

    Chicago, IL 60612

    Site contact: Kristen kitsch · kitsc@uic.edu

  • University of Minnesoa

    Minneapolis, MN 55455

    Site contact: Kendra Pallin · palli007@umn.edu

  • Washington School of Medicine at St. Louis

    St Louis, MO 63110

    Site contact: Kara Sauerburger · sauerburgerk@wustl.edu

  • Cincinnati Children's Hospital Medical Center

    Cincinnati, OH 45229

    Site contact: Amanda Pfeiffer · amanda.pfeiffer@cchmc.org

  • Children's Hospital of Philadelphia

    Philadelphia, PA 19104

    Site contact: Stephen Markham · markhams@chop.edu

  • Vanderbilt-Ingram Cancer Center

    Nashville, TN 37232

    Site contact: Vanderbilt-Ingram Service for Timely Access · 800-811-8480

  • MD Anderson Cancer Center

    Houston, TX 77030

    Site contact: Theresa Honey · TAHoney@mdanderson.org

  • Texas Childeren's Hospital

    Houston, TX 77030

    Site contact: Najeeba Ali · nmali@texaschildrens.org

  • Children's Hospital of Wisconsin

    Milwaukee, WI 53226

    Site contact: Veronica Seher · vseher@mcw.edu

Study contacts (from the official record)

  • Vanderbilt-Ingram Service for Timely Access · 800-811-8480 · cip@vanderbilt.edu
All healthy volunteers studies in Illinois →
Studying Health Outcomes After Treatment in Patients With… (NCT03932786) | Bored Studies