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Supportive Care Needs of Caregivers of People With Erdheim-Chester Disease and Other Histiocytic Diseases

Memorial Sloan Kettering Cancer Center · NCT03990428

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Ages 18+ · All sexes
Healthy volunteers
Accepted
Study type
Observational
Target enrollment
250
US sites recruiting
1
Study start
June 14, 2019
Record last updated
July 2, 2026

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

This study is being done to answer the following question: What are the supportive care needs of informal caregivers of people with Erdheim-Chester disease and other histiocytic diseases?

Being studied: online surveys

Conditions: Supportive Care Needs of Caregivers

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria

  • Self-identified informal caregiver (family member or friend who provides unpaid support) for a patient with Erdheim-Chester Disease (or LCH, RDD, or JXG for the exploratory aim).
  • Proficiency to complete study assessments in English, evaluated at the time of consent.
  • Age 18 or over.

Exclusion Criteria

  • Participant unwilling to sign consent.
  • Participant unable to complete web-based assessments.

Recruiting US locations

  • Memorial Sloan Kettering Cancer Center

    New York, NY 10065

    Site contact: Eli Diamond, MD · 212-610-0243

Study contacts (from the official record)

  • Eli Diamond, MD · 212-610-0243 · diamone1@mskcc.org
  • Katherine Panageas, DRPH · 646-888-8237
All healthy volunteers studies in New York →
Supportive Care Needs of Caregivers of People With Erdheim-Chester… (NCT03990428) | Bored Studies