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Friedreich Ataxia Global Clinical Consortium UNIFIED Natural History Study

Friedreich's Ataxia Research Alliance · NCT06016946

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Any age listed · All sexes
Healthy volunteers
Accepted
Study type
Observational
Target enrollment
3000
US sites recruiting
9
Study start
June 28, 2023
Record last updated
September 1, 2026

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

This project is a global, multicenter, prospective, longitudinal, observational natural history study that can be used to understand the disease progression and support the development of safe and effective drugs and biological products for Friedreich ataxia.

Conditions: Friedreich Ataxia

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria

  • Both males and females of any age
  • Individuals with Friedreich ataxia (FA): Participants that meet genetically confirmed diagnosis of Friedreich ataxia
  • Written informed consent provided
  • Informed consent must be obtained for all participants
  • For underage participants, they and the parent/ legally authorized representative have to sign the informed consent form, child assent (if applicable)
  • Persons who are not legally competent require the informed consent of their legally authorized representative

Exclusion Criteria

  • Unable or unwilling to provide informed consent
  • Acute or ongoing medical or other conditions that would interfere with the conduct and assessments of the study
  • For any reason in the opinion of the investigator, participant would be unlikely or unable to comply with study protocol requirements.

Recruiting US locations

  • UCLA Ataxia Center

    Los Angeles, CA 90095

    Site contact: Westley Ulit · 1-310-206-8153 · WUlit@mednet.ucla.edu

  • University of Colorado

    Denver, CO 80045

    Site contact: Dillan Patel · 303-724-2642 · DILLAN.PATEL@CUANSCHUTZ.EDU

  • University of Florida - Neurology

    Gainesville, FL 32610

    Site contact: Mackenzi Coker · 1-352-294-8754 · mcoker@peds.ufl.edu

  • USF Ataxia Research Center

    Tampa, FL 33612

    Site contact: FA Study · 1-813-974-5909 · lcampbel@usf.edu

  • Emory University Hospital - Neurology

    Atlanta, GA 30329

    Site contact: UNIFAI Study · 404-727-1509

  • University of Iowa, Stead Family Children's Hospital

    Iowa City, IA 52242

    Site contact: Corey McDaniel · 1-319-335-7498 · corey-mcdaniel@uiowa.edu

  • Ohio State University - Neurology

    Columbus, OH 43221

    Site contact: Marco Tellez · 614-688-7837 · marco.tellez@osumc.edu

  • Children's Hospital of Philadelphia

    Philadelphia, PA 19104

    Site contact: FA Program · 267-426-7538 · FAPROGRAM@chop.edu

  • St. Jude Children's Research Hospital

    Memphis, TN 38105

    Site contact: Jean Laboe · 1-901-595-1693 · jean.laboe@stjude.org

Study contacts (from the official record)

  • Mackenzi Coker · +14848796160 · fagcc-clinops@curefa.org
  • Jennifer Farmer · 14848796160 · jen.farmer@cureFA.org
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Friedreich Ataxia Global Clinical Consortium UNIFIED Natural… (NCT06016946) | Bored Studies