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RecruitingAccepts healthy volunteers

Quality of End-of-Life Care for Children With Cancer

Children's Oncology Group · NCT07412002

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Opens the official ClinicalTrials.gov record, with the study team’s contacts. Bored Studies doesn’t enroll anyone.

Key facts

Compensation
Not posted. Ask the study team before screening.
Who can join
Ages 18+ · All sexes
Healthy volunteers
Accepted
Study type
Observational
Target enrollment
2425
US sites recruiting
28
Study start
July 31, 2026
Record last updated
September 4, 2026

Status re-checked against ClinicalTrials.gov within the last 12 hours.

What the study is about

This study examines the role of access to care, patient/family interactions with the healthcare system, and stress in explaining variations in quality of end-of-life care. The data collected from this study may help researchers develop a model for identifying patients at risk of low-quality end-of-life care as well as recommendations for potential future interventions.

Being studied: Non-Interventional Study

Conditions: Childhood Hematopoietic and Lymphatic System Neoplasm; Childhood Malignant Solid Neoplasm

Eligibility criteria

Copied from the official record. The study team makes the final decision at screening.

Show full criteria

Inclusion Criteria

  • Index Child (COG Registered Patient):
  • Must be deceased
  • \< 18 years old at time of death
  • Diagnosed with any oncologic condition
  • History of enrollment on Stratum 1 of APEC14B1, Project:EveryChild
  • Note: history of treatment on a COG therapeutic trial is not required
  • Resided in the United States, including Puerto Rico, as evidenced by most recent address, at the time of death

Bereaved Parent(s):

  • Must be a parent, legal guardian, or caregiver (biological or non-biological) of an eligible Index Child enrolled on APEC14B1 with current Consent to Future Contact (e.g., from the APEC14B1 Part B Consent)
  • Self-reported confirmation of familiarity with the care received by the Index Child in the last month of their life
  • Bereaved parent must understand English or Spanish (written and/or spoken)
  • Must be a parent/guardian/key contact from the Index Child's APEC14B1 Future Contact study record or must be referred by one of the APEC14B1 contacts
  • Bereaved parent must be >= 18 years old at the time of ALTE24C1 study enrollment

Regulatory Requirements

  • Bereaved parent must provide verbal or implied informed consent
  • For all participants, all institutional, FDA, and NCI requirements for human studies must be met

Recruiting US locations

  • Children's Hospital of Alabama

    Birmingham, AL 35233

    Site contact: Site Public Contact · 205-638-9285 · oncologyresearch@peds.uab.edu

  • Arkansas Children's Hospital

    Little Rock, AR 72202-3591

    Site contact: Site Public Contact · 501-364-7373

  • Kaiser Permanente-Oakland

    Oakland, CA 94611

    Site contact: Site Public Contact · 877-642-4691 · Kpoct@kp.org

  • Alfred I duPont Hospital for Children

    Wilmington, DE 19803

    Site contact: Site Public Contact · 302-651-5572 · Allison.bruce@nemours.org

  • Golisano Children's Hospital of Southwest Florida

    Fort Myers, FL 33908

    Site contact: Site Public Contact · 239-343-5333 · molly.arnstrom@leehealth.org

  • Memorial Regional Hospital/Joe DiMaggio Children's Hospital

    Hollywood, FL 33021

    Site contact: Site Public Contact · 954-265-1847 · OHR@mhs.net

  • Nemours Children's Clinic-Jacksonville

    Jacksonville, FL 32207

    Site contact: Site Public Contact · 302-651-5572 · Allison.bruce@nemours.org

  • Nemours Children's Hospital

    Orlando, FL 32827

    Site contact: Site Public Contact · 302-651-5572 · Allison.bruce@nemours.org

  • Nemours Children's Clinic - Pensacola

    Pensacola, FL 32504

    Site contact: Site Public Contact · helpdesk@childrensoncologygroup.org

  • Children's Healthcare of Atlanta - Arthur M Blank Hospital

    Atlanta, GA 30329

    Site contact: Site Public Contact · 404-785-0232 · Olivia.Floyd@choa.org

  • Augusta University Medical Center

    Augusta, GA 30912

    Site contact: Site Public Contact · 706-721-2388 · ga_cares@augusta.edu

  • Blank Children's Hospital

    Des Moines, IA 50309

    Site contact: Site Public Contact · 515-241-8912 · samantha.mallory@unitypoint.org

  • Sinai Hospital of Baltimore

    Baltimore, MD 21215

    Site contact: Site Public Contact · 410-601-9083

  • Corewell Health Grand Rapids Hospitals - Helen DeVos Children's Hospital

    Grand Rapids, MI 49503

    Site contact: Site Public Contact · 616-391-1230 · crcwm-regulatory@crcwm.org

  • Bronson Methodist Hospital

    Kalamazoo, MI 49007

    Site contact: Site Public Contact · 616-391-1230 · crcwm-regulatory@crcwm.org

  • Children's Mercy Hospitals and Clinics

    Kansas City, MO 64108

    Site contact: Site Public Contact · 816-302-6808 · COGResearchGroup@cmh.edu

  • Renown Regional Medical Center

    Reno, NV 89502

    Site contact: Site Public Contact · 775-982-5050 · Renown-CRD@renown.org

  • Albany Medical Center

    Albany, NY 12208

    Site contact: Site Public Contact · 518-262-5513

  • State University of New York Upstate Medical University

    Syracuse, NY 13210

    Site contact: Site Public Contact · 315-464-5476

  • Montefiore Medical Center - Moses Campus

    The Bronx, NY 10467

    Site contact: Site Public Contact · 718-379-6866 · eskwak@montefiore.org

  • Rainbow Babies and Childrens Hospital

    Cleveland, OH 44106

    Site contact: Site Public Contact · 216-844-5437

  • Children's Hospital of Pittsburgh of UPMC

    Pittsburgh, PA 15224

    Site contact: Site Public Contact · 412-692-8570 · jean.tersak@chp.edu

  • Rhode Island Hospital

    Providence, RI 02903

    Site contact: Site Public Contact · 401-444-1488

  • Dell Children's Medical Center of Central Texas

    Austin, TX 78723

    Site contact: Site Public Contact · 512-628-1902 · TXAUS-DL-SFCHemonc.research@ascension.org

  • UT Southwestern/Simmons Cancer Center-Dallas

    Dallas, TX 75390

    Site contact: Site Public Contact · 214-648-7097 · canceranswerline@UTSouthwestern.edu

  • University of Virginia Cancer Center

    Charlottesville, VA 22908

    Site contact: Site Public Contact · 434-243-6303 · uvacancertrials@hscmail.mcc.virginia.edu

  • Providence Sacred Heart Medical Center and Children's Hospital

    Spokane, WA 99204

    Site contact: Site Public Contact · 800-228-6618 · HopeBeginsHere@providence.org

  • Saint Vincent Hospital Cancer Center Green Bay

    Green Bay, WI 54301

    Site contact: Site Public Contact · 920-433-8889 · WI_research_admin@hshs.org

All healthy volunteers studies in Alabama →
Quality of End-of-Life Care for Children With Cancer (NCT07412002) | Bored Studies